Tuesday, August 17, 2010

Online Patient Communities: Get Your HBOT On

We're noticing more patients sharing their hyperbaric oxygen therapy experiences online, and again we urge our readers and HyperbaricLink visitors to join the revolution already in progress. Offhand, we can't think of a better way, short of participating in a randomized clinical trial, for you to help yourself, help other patients, and help advance hyperbaric medicine.

PatientsLikeMe still earns our loyal fandom and high marks for data richness, substance, and openness. The site's "Hyperbaric Oxygen Therapy HBOT Treatment Report" now includes 9 patient evaluations. A start. These 9 patients have undergone HBOT for 12 different reasons, with self-reported efficacy ranging from "none" to "major."

Let's say you're not into sharing your outcomes, but chatting with other patients like you sounds appealing. Try MDJunction. We eavesdropped on a hyperbaric treatment string in the fibromyalgia support group, and elsewhere on the site you'll find snippets of conversation on other HBOT-related topics that may interest you.

Please comment below about your experience with PatientsLikeMe and MDJunction. Where else on the World Wide Web are HBOT patients talking it up? We want to know.

O2.o is the news blog of HyperbaricLink, the independent web guide to hyperbaric oxygen therapy.

2 comments:

  1. I found your post really interesting and it has really improved my knowledge on the matter.

    ReplyDelete
  2. Thank you kindly, dharmesh, for your readership and comment. Cheers and good health. R

    ReplyDelete